Adults with Down’s Syndrome experience significantly poorer health outcomes and face higher risks of treatable and preventable conditions. Yet with the right preparation, communication support and follow-up, annual health checks can provide a powerful opportunity to reduce health inequalities and improve quality of life.

In this podcast, Varshali Swadi, Professional Engagement and Development Lead and Debbie Campbell, Family Support Service Officer from Down’s Syndrome Scotland, share practical guidance, lived experience, insight and clear actions for professionals to deliver equitable, person-centred care. They talk about why the annual health check matters, what good practice looks like, and how it can quite literally save lives.

A set of resources for people with Down’s syndrome aged 16+

The key focus of Shahid’s research team is tracking the early markers of Alzheimer’s disease (AD) in people with Down’s syndrome. Identifying these changes as early as possible is crucial for developing better interventions and ensuring that individuals can live longer, healthier lives.

For more information about the study and how to join it can found here

A guide to the initial care for a newborn baby with a diagnosis of Down’s syndrome. It is intended for use by all health professionals involved in the care of babies with Down’s syndrome across Scotland. This publication has been developed in collaboration between the NHS community throughout Scotland and Down’s syndrome Scotland.

A booklet about growing up for young people with Down’s syndrome

A booklet for girls with Down’s syndrome about periods

A booklet about health, diet and weight for people with Down’s syndrome

A booklet about getting older for people with Down’s syndrome

A booklet about the Annual Health Checks for health care professionals