Resources

We have resources for professionals, parents and carers as well as easy-read resources for young people and adults with Down’s syndrome. You can view resources in each category by using the buttons below.

If you can’t find what you need or would like to talk through any of the information or resources in this section please contact our Family Support Service team on 0300 030 2121 or email familysupportservice@dsscotland.org.uk.

We will continue to add resources over time so if there is anything you would like to see more information on, please let us know.

Health Professionals Health resources Parents and carers of young people and adults Professionals
 Equal Health Equal Lives - podcast about Scottish Annual Health Check for adults with Down’s Syndrome

1 April 2026

Adults with Down’s Syndrome experience significantly poorer health outcomes and face higher risks of treatable and preventable conditions. Yet with the right preparation, communication support and follow-up, annual health checks can provide a powerful opportunity to reduce health inequalities and improve quality of life.

In this podcast, Varshali Swadi, Professional Engagement and Development Lead and Debbie Campbell, Family Support Service Officer from Down’s Syndrome Scotland, share practical guidance, lived experience, insight and clear actions for professionals to deliver equitable, person-centred care. They talk about why the annual health check matters, what good practice looks like, and how it can quite literally save lives.

Parents and carers of young people and adults
Supporting Transitions: A Guide for Family Carers of Young People with Developmental Disabilities

18 September 2025

This comprehensive guide is designed to support family carers through one of the most challenging and important stages in a young person’s life—the transition from secondary school to adult life.

It offers practical information, advice, and signposting around key areas including planning and decision-making, further education and employment pathways, legal rights, financial support, housing options, and accessing adult services. Drawing on the real-life experiences of families, the guide is clear and accessible.

Ideal for families beginning to plan for the future, this resource can help you feel more informed, confident, and supported throughout the transition journey.

Health resources Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about puberty

21 May 2024

A booklet about growing up for young people with Down’s syndrome

Health resources Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about periods

21 May 2024

A booklet for girls with Down’s syndrome about periods

Health resources Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about keeping healthy

21 May 2024

A booklet about health, diet and weight for people with Down’s syndrome

Health resources Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about getting older

21 May 2024

A booklet about getting older for people with Down’s syndrome

Health resources Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about the menopause

21 May 2024

Health resources Parents and carers of young people and adults Professionals
Let's talk about Annual Health Checks

21 May 2024

Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about Down's syndrome

29 April 2024

A booklet about Down’s syndrome for people with Down’s syndrome.

Parents and carers of young people and adults Young people and adults with Down's Syndrome
Let's talk about dementia

29 April 2024

A booklet about dementia for adults with Down’s syndrome.

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